AN INDEPEDENT CHARITY which provides help and support for those with Spina Bifida and/or Hydrocephalus who live on the Isle of Wight, and their families, helping them gain independence and integration in the community.

SPINA BIFIDA is a congenital abnormality resulting in the bones of the spine not joining properly, exposing the spinal cord leaving it liable to damage and infection. Surgery shortly after birth lessens the risk of infection but inevitably some disability results. Some are more severly affected and are confined to wheelchairs while others less severely disabled can walk with the aid of callipers and crutches.

HYDROCEPHALUS literally means 'water on the brain'. Excess cerebral fluid accumulates and if untreated can cause brain damage. Since the early 60's it has been possible to insert a valve to drain the fluid and prevent the build up of pressure.

Both abnormalities can occur independently but often occur together. Until 1960 most babies with Spina Bifida or Hydrocephalus died soon after birth, but surgical advancements have enabled many born since then to survive.

WE HELP OUR MEMBERS BY:

• Providing special equipment to aid physical development, and light-weight wheelchairs and other equipment for independent living.
• Advising and distributing information on a wide variety of problems.
• Helping disabled members set up their own homes etc.
• Providing grants to disabled members to help independence through: home furnishing, cars and car adaptations, holidays, career opportunity assistance, etc.

FUNDRAISING is actively undertaken by members and friends, including disabled members throughout the year.